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52

ABOUT THE ORGANISATION:

National Federation of Voluntary

Bodies Providing Services to

People with Intellectual Disability

The National Federation of Voluntary Bodies Pro-

viding Services to People with Intellectual Disability

(National Federation) is a national umbrella organiza-

tion for voluntary/non-statutory agencies providing

direct services to people with intellectual disabilities

in Ireland. The organization and its 60 members

account for more than 85 percent of this country’s

direct service provision to people with an intellectual

disability.

The National Federation has developed initiatives

to ensure that staff and volunteers in their services

are equipped to meet the many challenges ahead,

initiatives to promote the inclusion of people with

an intellectual disability in their own communities,

and key policy development initiatives. Another key

function is the sharing of information among member

organizations.

The National Federation is proactive in developing

and contributing to policy initiatives that have a pos-

itive impact on the lives of children and adults with

an intellectual disability. Working closely with various

subcommittees, the organization develops policy

positions on a wide range of topics for consideration

by and approval of its Board. It also contributes

and responds to initiatives developed by statutory

authorities, including government representatives,

the health service industry, and an extensive range

of advisory and expert groups.

The National Federation of Voluntary Bodies also

contributes to the development of various EU

directives and to the implementation of the Council

of Europe’s Disability Action Plan.

National Federation of Voluntary

Bodies Providing Services to People with

Intellectual Disbability

Ireland

Ms. Alison Harnett

Tel. +353 91 792316

www.fedvol.ie www.informingfamilies.ie

BROAD DISSEMINATION:

Online courses available for download

The Royal College of Physicians of Ireland has

adopted the National Federation’s online train-

ing course – developed through the research

of the Informing Families pilot implementation

programme – nationally for all paediatric train-

ees. The course is similarly under current con-

sideration for formal adoption by the Institute

of Obstetrics following positive feedback from

the Executive Council of the Institute in 2015.

Funding has been provided for the national

implementation of the guidelines by the De-

partment of Health. The funding required is for

a project coordinator to facilitate the roll-out

of regional “training of trainers” courses and

to provide printed copies of the guidelines and

copies of the DVD “Words You Never Forget”

to professionals. The project website provides

information to families in the early stages fol-

lowing their child’s diagnosis. This information

has been translated into seven languages with

financial support from the Health Services

Executive.

Find more:

www.informingfamilies.ie/about-the- project/support-and-training-materials.257.html

ABOUT ZERO PROJECT ANAYLSIS

In-depth Research of Innovative Practices

EASPD Secretary General: Luk Zelderloo

Essl Foundation Programme Manager: Michael Fembek

Author: Wilfried Kainz

Project coordinator: Sabrina Ferraina

Graphic Design: Christoph Almasy

Graphic Facilitation: Petra Plicka

Editing: John Tessitore

This in-depth analysis can be downloaded for free at

www.zeroproject.org

and

www.easpd.eu

For information or copies, contact:

office@zeroproject.org

Essl Foundation, Aufeldgasse 17-23, 3400 Klosterneuburg, Austria

© Essl Foundation and EASPD, April 2016. All rights reserved.