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Supported Decision-Making Service for Persons with Disabilities | Service Model

The Human Rights Center for People with Disabilitis

(3) End-of-life issues:

one of the most important issues preoccupying senior citizens is the

end-of-life issue: how to die; where to die; in what manner to die; the scope and type

of medical treatment to receive before death; burial arrangements; and more. Specific

issues may arise regarding the role of the decision-making supporter in providing

assistance for the realization of the person's wills and preferences regarding the end of

their life (for instance, by not taking drugs). These issues in their entirety are neither

included nor discussed under "Health Issues" in Bizchut's model, and taking into

consideration the provisions of the Dying Patient's Law, 5766-2005, the issue becomes

even more complex.

(4) Issues of support and inter-generational money transfer:

another issue of crucial

importance for senior citizens concerns economic inter-generational transfer. Senior

citizens choose, to whatever degree, to support their family members, children

and grandchildren. The support is provided in different ways, including by diverse

monetary and property transfers. Here too, these issues are not sufficiently discussed in

the "Financial Issues" section.

(5) Issues of training and exposure to the array of services and rights of senior citizens:

the section which discusses supporter training should provide specific information

regarding the practical and daily challenges faced by the population of senior citizens

(which is different from that of the population of persons with disabilities). There

is room to equip supporters with specific knowledge regarding the diverse array of

services, support systems and knowledge available to this population.

(6) The issue of support in the preparation of additional alternatives to guardianship:

one of the features of the need for guardianship for senior citizens is that it usually

involves a continuing and progressive process which entails changing, declining

abilities, and requires increasing levels of support to the point in which the support

model may not adequately provide a solution to the formal legal needs. For instance,

in states of advanced stage dementia, cognitive or mental decline may reach a state

in which even the highest level of support will not enable a person to make decisions

that express and reflect their preferences at that specific point in time. To avoid the

need to "move" to the level of guardianship at that stage, it is advisable that at the time

supported decision-making is obtained, at the person's choice and in a proactive and

planned manner, the person be presented with the additional legal planning options

(such as preparing powers of attorney and/or advance medical instructions), as a tool

which would obviate the need for guardianship if and to the extent the support model

does not enable decision-making.

(7) The legal status of decision-making supporters:

for diverse reasons, different service

providers in the area of gerontology are reluctant to respect the status and role played

by decision-making supporters of senior citizens – particularly when the decision runs

contrary to their position. The above pertains mainly to professionals who are of the

opinion that the decision of the senior citizen is erroneous (namely, is contrary to their

recommendation), and that it is "influenced" by their supporters (family members).

Precisely to prevent circumstances in which decision-making supporters of senior

citizens are excluded, and to prevent the redundant use by professionals of the argument

that "guardianship is necessary" – it seems that entrenching the status of decision-

making supporters on a statutory level is justified.

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