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Supported Decision-Making Service for Persons with Disabilities | Service Model

The Human Rights Center for People with Disabilitis

training, comprehension and implementation – all of which take time. Therefore, it will take

years to understand and assess how successful Amendment 18 to the law has been. At the same

time, it is clear that the adoption and implementation of a model endorsing the alternative of

decision-making support has not only become relevant and accessible for senior citizens – but is

also required and mandated by the new amendment to the law, opening the door to and creating

an opportunity for a real change to guardianship in Israeli society.

B. Support in decision-making: definition and relevancy for senior citizens as an

alternative to guardianship

The conceptual framework of support in decision-making as an alternative to "classic" guardianship

on the one hand and as an alternative to the institution of "substitute decision-making" on the

other, has been known for many years in the realm of guardianship, long before the Convention

on the Rights of Persons with Disabilities was drafted and adopted. Various European models

which were developed as early as in the 70's and 80's of the previous century, adopted a world-

view according to which instead of subordinating senior citizens to the "authority" of a guardian,

a legal mechanism should be created offering an array of public-social services in the framework

of which senior citizens (and persons with disabilities) are provided with a support system in the

form of a "friend" or "supporter" or a sort of assistant, who provide assistance and support in

decision-making processes without depriving the senior citizen of their liberty and legal status

(for an overview of such systems in countries such as Sweden or Germany (see: Doron, I. (2002)

Elder Guardianship Kaleidoscope: A Comparative Legal Perspective. International Journal of

Law, Policy and the Family, 16(3), 368-398).

Although these new legal settings have not conceptualized or defined the term "decision supporter"

in a unified manner, they have clarified its main underlying principles as follows: firstly – it is not a

classic guardianship in the sense that one individual is "subordinated" to the "control" of another;

secondly – the individuals are not "deprived" of their capacity, but rather, continue to have the

capacity and power to make decisions; thirdly – the individuals are not "replaced" by substitute

decision makers who make decisions on their behalf, even if the decisions purport to reflect the

position of the individuals themselves. It is a procedure which acknowledges the fact that legal

capacity is a fluid, gray term that is difficult to identify and conceptualize. It is a procedure

which acknowledges the fact that universally, almost all human beings make decisions following

consultation, assistance and support they receive – obviously, at varying levels and in diverse

manners. Finally – it is a world-view which believes that through empowerment, support, and

provision of information, accessibility and respect, almost any individual will be able to express

his will and preferences in a real and authentic manner, and that said will and preferences must be

respected. These are the principles underlying all new alternatives to guardianship which adopt

one model or another of support in decision-making (unlike guardianship and unlike "substitute

decision-making").

The call for and interest in the development and adoption of a legal mechanism of support in

decision-making as an alternative to guardianship for senior citizens has obviously been greatly

affected by the drafting, accession and adoption of the Convention on the Rights of Persons with

Disabilities. Although senior citizens are not "persons with disabilities" by definition, the vast

majority of senior citizens in whose case guardianship procedures were undertaken fall under

the category of persons with disabilities (for instance, due to their cognitive disability as a result

of dementia). Consequently, a new "trend" of endorsing the development of procedures for the

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