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Supported Decision-Making Service for Persons with Disabilities | Service Model

The Human Rights Center for People with Disabilitis

2. Internal reporting

: The supported decision-making service should include an internal reporting

mechanism regarding risk-related dilemmas, both in order to avoid leaving the supporter with

sole responsibility, and in order to ensure that all considerations relevant to the preferable

intervention by the supporter and the support service are taken into account.

3. Withholding support

: The supporter is not a care professional and therefore has different

responsibilities from care professionals. While more stringent rules apply to care professionals

as far as risk prevention is concerned, supporters – by their nature – should refrain from

adopting a paternalistic position and avoid substituting considerations of the person's wishes

with considerations involving their best interests, as viewed by the supporter. At the same time,

supporters can refuse to support a person who wishes to pursue harmful decisions or suggest

bringing another person into the discussion about the decision. In this case too, care must be

taken to avoid over-protection and an overly risk-averse approach.

4. Limiting supporters' liability

: The law should expressly provide supporters bear no liability

in case of harm, provided they acted according to these guidelines.

K. Termination of supporter – participant relationships

The initial condition for supported decision-

making is the person's motivation to receive

it. Consequently, the person can decide at any

given moment to terminate the support. Over the

course of the pilot, it seemed that in some cases

the support had been exhausted. So, for instance,

one of the participants asked to continue seeing

her supporter, but for companionship rather

than support. We believe the support process,

which can have ups and downs, should not be

terminated hastily, and that a dormant support

process, that can be reactivated if the need to

make another decision in the person’s life arises,

should be provided for. Finally, in cases of long

term service with no fixed term, it is advisable

to establish points at which the desire and need

for continued support is to be examined.

L. Partners in the support process

It is very important, in the support process, to understand the person's life and to get acquainted

with the important people in their life. These individuals, who form the person's natural and

professional support net, can take part in the support process, but may sometimes act as a barrier

that has to be addressed during the process. The main partners are the person's close environment

(family members, friends and the community) and their professional environment (service

providers, social workers, counselors and other professionals). The work vis-à-vis said partners

must consist of three aspects:

Pilot participant’s parents:

As the pilot progressed we became

aware of small changes in Yair and

in ourselves. Yair started to make

more decisions without parental

intervention and we, the parents,

gradually relinquished our role as

mediators…. Today, Yair understands

perfectly well that we are there for

him but that we are willing to be in

the 'background', assuming the role

of supporters.

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