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Supported Decision-Making Service for Persons with Disabilities | Service Model

The Human Rights Center for People with Disabilitis

Throughout the stages listed above, the person and the supporter are required to make decisions

about the level of support, namely, how intensive and how active it is. In this context, several

scenarios are possible – the person wishes to act independently despite the supporter’s opinion

that they will not be able to succeed alone or the person requests more intensive support than the

supporter thinks they need. As part of the effort to avoid paternalism, there needs to be dialogue

between the person and the supporter, acknowledging that asking for help and support is natural

and legitimate, as is the desire to try to proceed independently. The person and the supporter

should decide whether the support will be given mainly in the form of consultation and behind-

the-scenes assistance (for instance, by providing assistance with writing a letter or understanding

information), or whether it also requires the supporter's presence and involvement in the different

decision-making stages vis-à-vis the different figures in the person's life (for instance, taking part

in meetings or telephone conversations, escorting the person to National Insurance Institution

appointments, conducting joint conversations with the parents).

Summary of the support outline

The combination of the area of support, stages of support and level of support creates the supported

decision-making outline, as demonstrated below through the different processes that took place

in the pilot:

Example 1:

area:

property – drawing up a will

stage:

all stages

level of support:

medium

A pilot participant expressed a clear desire to draw up a will. The issue in question was how to

pursue this and how to obtain legal aid for this purpose. The process began with exploring the

wishes and understanding the available options – drawing up a will independently or approaching

legal aid to obtain the services of a lawyer who would assist to draw up the will. After a decision

was made to proceed with the second option, we broke down the execution into different stages:

obtaining a psychiatric certificate concerning the participant's capacity to draw up a will, contacting

legal aid and completing forms to secure representation. The participant did not require much help

vis-à-vis the psychiatrist but needed mediation in her communications with legal aid.

Example 2:

area:

living accommodations

– moving into independent living accommodations

stage:

implementation

level of support:

medium

Level of support

3

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